The Power of Redesign!
Growing, Sewing and Moving Forward!
Tuesday, February 16, 2010
Saturday, February 06, 2010
Thursday, January 21, 2010
Lions and Tigers and Bears -- Ommaya . . .
After 3 months of treatment, I had my first set of scans and re-confirmed stable results last week. It required a 2.5 hour stay in the MRI machine, but it’s well worth it because I got the brain MRI I needed to get my neurosurgical consult scheduled for the Ommaya (don't worry, it's not graphic) Reservoir. If I can get back to this post after the consult, I’ll update it with my surgery date, which should be soon!
Soon is soon – it’s tomorrow January 22 at 7am!
Monday, December 28, 2009
Keeping up with Crafting Something
For my birthday last year, my friends Ana and Ravi gave me a cupcake decorating book. During this last burst of treatments, while in house arrest and going out of my mind because my motor and cognitive functions have been out of whack . . . I needed some inspiration. The directions promised to be for novice decorators. You be the judge.
From the “TV Dinner Collection” Chicken Drumstick, Chocolate Pudding, Peas and Carrots, and Mashed Potatoes.
These went to the staff at the Radiation office as well as my Onc practice who are the regular recipients of my cupcakes.
Round 2 was a bit harder, but at least I had the rhythm right. I knew what I was getting myself into. Instead of trying to my 50 . . . I only made about 20 cupcakes and I don’t think they need any explanations.
Life, Craft, Snow, in Reverse – Forward, Who knows??
Thursday, August 27, 2009
Israel August 09
As you will see, our trip was full of seeing Barak’s family, mostly spending time with his sister Inbal and baby Uri. We went for a walk in a new park in Herzliya (just a bit north of Tel Aviv) with Inbal, Uri, Avner (Uri’s Dad), Barak’s Mom, and our niece Nof who came in from Jerusalem. Later that night, Nof, Barak, and I went out to eat shawarma and falafel at one of the local places in Netanya (B’s hometown). There’s also some pics of us eating a rather large lunch on Shabbat at a place called Eunice. Typical Mediterranean fair with lots of salade and pita and shish kebab and me drinking signature Lemon Nana (lemonade with mint).
Wednesday, August 26, 2009
New Blog Editor - - - Trial and Error
I’m trying out a new editor . . . much easier for me to use and understand than the blogger one and I thought I’d give you something to look at . . . Honeymoon Photos!!!
To give a little background . . . We started in NYC, then pics on the ship, then Turks and Caicos, then the cruise company’s private island in the Bahamas and then Nassau. We were onboard for 9 days.
Trust and You Shall NOT See!
So . . . I was working all day long on my photos and the website that I loaded them on had a “glitch” and now they are lost in cyberspace. If you recall, the last time I downloaded and edited a significant amount of photos, for our honeymoon in June, my computer’s motherboard crashed and I ended up waiting until my beautiful new desktop arrived to finish working on them. After uploading 316 photos of Brussels, Uri, hummus, and some random things around Israel, I am again disappointed. Maybe I should just take less than 50 pictures per occasion an just call it a day!
Wednesday, August 19, 2009
Home and back to the routine!!
We're home . . and things are shaping up to feel like a usual August summer on the eastern seaboard. It's hot and humid and humid and humid. After a 6 hour lay-over in Paris, our 8 hour flight to Philly left me with a major headache which put me to bed at 3pm and wake at 5am. I rested and tried to get some fluids in me by the time I went to chemo at 12nn.
There's about 10 days between now and when school starts here at Haverford. B is working hard on his writing and sending out his book which conveniently came during our trip. He was very excited to open the box with his 10 copies when we returned. He's officially on Amazon.com.
Friday, August 07, 2009
Today is our second day in Israel and I've had more food in 48 hours than I usually do in a week. We've spent most of our time sleeping (very nice) and eating, and Barak has been Chubby's personal sleeping bag of sorts. After being quite hesitant to hold him, Barak picked up Uri while he was crying on Wednesday night and Uri fell fast asleep on his uncle's huge chest. Now Barak is deemed the official baby nurse. Last night when Barak tried to put Uri back in his bassinet, Uri began a protest and back to Barak he went.
This afternoon it was about 90 degrees and we went for a walk in downtown Netanya -- Barak's hometown. The streets were full of French and Russian tourists and by 1pm, they were all heading back to their flats to take a nap and get ready for shabbat. Tonight, with his parents, we will head over to Barak's sister's for dinner with her & Avner, and his mother, Rena and sister Osnot.
Sunday, July 26, 2009
More than Cancer . . . What a Concept ?!?!?!
Sometimes, I forget that my life is more than just dealing with cancer. I know, I know. Not really awesome thinking, but honest. My life moves in 3 week time-tables with the side-effects of each treatment carefully taken into account and the larger chunks of life are planned according to the 3 month spans between scans. That's just the way life goes now. I can't think of any other way to approach life anymore. I'd like to hope it's the antidepressants that make it difficult for me to conceptualize time that knew no boundaries of social convention like I did when planning my 20s . . . ha, there's a concept I've let go of . . . planning.
But, I've digressed . . . what a surprise. The purpose of this post was to say that I need to start posting about the things I've filled my days with. I started with my sewing in the fall, and then I moved to my art therapy group which is an amazing source of comfort and strength, and then my garden which is mostly organic vegetables. My plants . . . most of which I propagated completely by seed. I started them in February, in our sunroom on the radiator. I babied them for months and now they are outside and supposed to flourishing, but, because we are having really, really mild and rainy weather this summer, only in the last couple of days did my 39 cent cherry tomato seeds have their first flower turn fruit action.
I have a week before we leave to go to Israel, so don't expect much. But feel free to email and nag me if I don't produce . . . much like my plants.
In between treatment #2 and #3 I had a fabulous weekend in New York with the ladies I met in Dallas. Carrie arrived from Colorado on Thursday afternoon so I took the train up to meet her and Steph at Steph's Upper East Side Apartment that day. On Friday, we cruised to Midtown for a Betsey Johnson sample sale, met Cristina downtown at her place near NYU for some cheap dumplings and walked around Chinatown and Canal street before heading back up to Steph's to reunite with Melinda and Jen. Friday night through Saturday at noon we ate and chatted nonstop. Insanity! From then on, we documented the weekend with some photos!
Walking around the Upper East Side
50 chemo treatments
. . . Treatment #2 of the last cycle was my Golden Chemoversary. Barak was in DC at his Foreign Fighters Round Table, so Bethel, a history prof here at H-ford and the proud, proud owner of Cyan's besty Finnegan, came with me. I brought 50 mini cupcakes for 50 chemos. . . yes, oh, so eventful. On my 51st treatment Barak was back and Devlin was not down at the shore with his family so I bestowed on him our present to him . . . a matching shirt to mine stating "My Patient is My Homegirl." True to Devlin form, he was very touched and now addresses me as "Homegirl" when I enter the office . . . not sure if this was a good idea!